As a CRPS II sufferer of over 13 years now I could tell within the first few minutes this is what Maya was suffering from. Unfortunately it is very often misdiagnosed and completely misunderstood by so called medical 'professionals'.
My heart breaks for Maya & her family. As an adult this disease is excruciating and a very hard journey to navigate. Children should NEVER have to experience this condition. Her Mother was a protective warrior advocate! Things should never be this hard. This documentary is a sad but very real insight into a rare complex disease & condition and how sufferers & families are treated, dismissed & often worse, not just in the US, but around the world!
May this much needed documentary shed light on this condition & others and may this family find some justice. This family will forever be in my families hearts & thoughts going forward. We believe you Maya.
My heart breaks for Maya & her family. As an adult this disease is excruciating and a very hard journey to navigate. Children should NEVER have to experience this condition. Her Mother was a protective warrior advocate! Things should never be this hard. This documentary is a sad but very real insight into a rare complex disease & condition and how sufferers & families are treated, dismissed & often worse, not just in the US, but around the world!
May this much needed documentary shed light on this condition & others and may this family find some justice. This family will forever be in my families hearts & thoughts going forward. We believe you Maya.