I was rotating through genetics and a patients newborn screen revealed ALD. The attending recommended I watch the movie. I'm glad I did.
It's a rare disease, so it helped me remember the symptoms and pathophysiology. Unfortunately, Mr. Odones understanding of the disease turned out to be inaccurate and the oil doesn't seem to help in all cases, but he did good for the time. It's a great story that teaches empathy and how doctors don't know everything.
Update on the movie: The Odones have passed away, Lorenzo at age 30. The international myelin project is ongoing and continues to make progress, the odones friend Patricia is the current president of the organization. It has branches in 3 countries.
It's a rare disease, so it helped me remember the symptoms and pathophysiology. Unfortunately, Mr. Odones understanding of the disease turned out to be inaccurate and the oil doesn't seem to help in all cases, but he did good for the time. It's a great story that teaches empathy and how doctors don't know everything.
Update on the movie: The Odones have passed away, Lorenzo at age 30. The international myelin project is ongoing and continues to make progress, the odones friend Patricia is the current president of the organization. It has branches in 3 countries.